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Table 3 Summary of Dementia Landscape in Colombia according to action areas of WHO global dementia plan

From: Stakeholder perceptions of dementia in Colombia: a qualitative study

Action Area

Summary

Sample Quote

Dementia as a public health priority

Participants expressed concerns about insufficient government attention, resources, and unified guidelines. They noted the lack of policies directly addressing dementia and highlight the need for a comprehensive approach

鈥淚n our country, dementia is an invisible disease.鈥

Dementia awareness and friendliness

The participants emphasized insufficient awareness in Colombia about dementia, attributing symptoms to normal aging. Myths persist, leading to isolation and early institutionalization. Urban areas show greater awareness, with growing interest and consultations

鈥淐olombia is a heterogeneous country; the representation, experience, and imaginary of dementia are different in all contexts.鈥

Dementia risk reduction

Community education and awareness failures contribute to a lack of understanding about dementia causes, prevention, and early signs. Participants stressed the need for improved education and community campaigns regarding modifiable risk factors and the importance of early diagnosis

鈥楳uch-needed awareness campaigns that have an impact on prevention are sorely lacking 鈥

Dementia diagnosis, treatment, care and support

Challenges in dementia care included a shortage of qualified personnel, lack of knowledge among health professionals, and confusion in diagnostic terminology. Limited access to services, absence of standardized protocols, and inadequate non-pharmacological therapies were also highlighted. Participants proposed decentralizing memory clinics

鈥β The healthcare system lacks adequate time and screening methods during medical appointments. At the same time, the doctor does not have an approach to ask about issues of cognitive decline, therefore generating a delay in diagnosis and early intervention鈥

Support for dementia caregivers

Family associations played a vital role in guidance programs for caregivers. Despite increased reach due to the COVID-19 pandemic, there was insufficient social mobilization and not enough foundations to meet the growing demand. Virtual tools were proposed to continue workshops and support programs for caregivers

鈥淲e, from the foundation, do not replace the doctor, but we are an important complement.鈥

Dementia research and Innovation

Dementia research in Colombia has focused on population characterization, genetic studies, and clinical trials, mostly conducted in communities near research groups. Limited funding challenges solid research lines. Participants advocated for increased training programs, collaboration between research groups, and involving decision-makers to implement public policies

鈥淚 believe that those of us who are interested in these issues have to work almost with our resources.鈥