From: Stakeholder perceptions of dementia in Colombia: a qualitative study
Action Area | Summary | Sample Quote |
---|---|---|
Dementia as a public health priority | Participants expressed concerns about insufficient government attention, resources, and unified guidelines. They noted the lack of policies directly addressing dementia and highlight the need for a comprehensive approach | 鈥淚n our country, dementia is an invisible disease.鈥 |
Dementia awareness and friendliness | The participants emphasized insufficient awareness in Colombia about dementia, attributing symptoms to normal aging. Myths persist, leading to isolation and early institutionalization. Urban areas show greater awareness, with growing interest and consultations | 鈥淐olombia is a heterogeneous country; the representation, experience, and imaginary of dementia are different in all contexts.鈥 |
Dementia risk reduction | Community education and awareness failures contribute to a lack of understanding about dementia causes, prevention, and early signs. Participants stressed the need for improved education and community campaigns regarding modifiable risk factors and the importance of early diagnosis | 鈥楳uch-needed awareness campaigns that have an impact on prevention are sorely lacking 鈥 |
Dementia diagnosis, treatment, care and support | Challenges in dementia care included a shortage of qualified personnel, lack of knowledge among health professionals, and confusion in diagnostic terminology. Limited access to services, absence of standardized protocols, and inadequate non-pharmacological therapies were also highlighted. Participants proposed decentralizing memory clinics | 鈥β The healthcare system lacks adequate time and screening methods during medical appointments. At the same time, the doctor does not have an approach to ask about issues of cognitive decline, therefore generating a delay in diagnosis and early intervention鈥 |
Support for dementia caregivers | Family associations played a vital role in guidance programs for caregivers. Despite increased reach due to the COVID-19 pandemic, there was insufficient social mobilization and not enough foundations to meet the growing demand. Virtual tools were proposed to continue workshops and support programs for caregivers | 鈥淲e, from the foundation, do not replace the doctor, but we are an important complement.鈥 |
Dementia research and Innovation | Dementia research in Colombia has focused on population characterization, genetic studies, and clinical trials, mostly conducted in communities near research groups. Limited funding challenges solid research lines. Participants advocated for increased training programs, collaboration between research groups, and involving decision-makers to implement public policies | 鈥淚 believe that those of us who are interested in these issues have to work almost with our resources.鈥 |